
European network focused on rare malformation syndromes, intellectual and neurodevelopmental disorders. Organizes events, webinars, and symposiums to promote research and collaboration among healthcare professionals, researchers, and patient groups.
+250,000
Total organizations analyzedAnalysis by axis
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Methodology: Score calculated according to 6 CSR themes (Carbon, Biodiversity, Circular Economy, Sustainable Investments, Governance, Social Impact)
Sources: Public data, CSR reports, documented initiatives, official databases
Last update: January 2026
This analysis is not yet available in English. Please see the French version.
Leading organizations
Filnemus
B
Healthcare network focused on rare neuromuscular diseases, providing patient care pathways, diagnostic tools, therapeutic trials, and research.
MCGRE
A
Network of healthcare professionals, researchers, and patient associations dedicated to the care of rare blood cell and erythropoiesis disorders.
Réseau de Périnatalité Occitanie
B
Networking and support for healthcare professionals involved in perinatal care and the follow-up of vulnerable children.
Initiatives identified among leaders
Mise en place d'une politique nationale et européenne pour les maladies rares
“Mise en place d'une politique nationale et europée...” - FilnemusProgramme d’étude sur transition pédiatrique-adulte pour drépanocytose et inclusion sociale
“Ce programme vise à améliorer la transition des so...” - MCGRECréation d'un groupe de réflexion éthique
“Création d'un groupe de réflexion éthique pour dis...” - Filnemus82% of similar organizations communicate on CSR issues
+290 initiatives collected from 50 similar organizations
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