
European network focused on rare malformation syndromes, intellectual and neurodevelopmental disorders. Organizes events, webinars, and symposiums to promote research and collaboration among healthcare professionals, researchers, and patient groups.
+160,000
Total organizations analyzedAnalysis by axis
Access the detailed report with all sector benchmarks, in-depth competitive analysis and actionable recommendations.
Methodology: Score calculated according to 6 CSR themes (Carbon, Biodiversity, Circular Economy, Sustainable Investments, Governance, Social Impact)
Sources: Public data, CSR reports, documented initiatives, official databases
Last update: December 2025
This analysis is not yet available in English. Please see the French version.
B
The organization is among the top 20% of organizations with the most committed CSR communication, excluding the top 5%, among comparable organizations.
Leading organizations
Filnemus
B
Healthcare network focused on rare neuromuscular diseases, providing patient care pathways, diagnostic tools, therapeutic trials, and research.
Fondation Maladies Rares
B
Coordination and acceleration of research on all rare diseases. Support for excellence research projects, sharing and dissemination of knowledge.
CNRHR La Pépinière
B
Resource center for rare disabilities, providing support, training, and documentation for professionals and caregivers.
Initiatives identified among leaders
Développement d'un projet de recherche pour améliorer la mobilité des personnes déficientes visuelles
“Développement d'un projet de recherche pour amélio...” - CNRHR La PépinièreFormer et informer sur la recherche sur les maladies rares
“La Fondation Maladies Rares forme et informe sur l...” - Fondation Maladies RaresCréation d'un groupe de réflexion éthique
“Création d'un groupe de réflexion éthique pour dis...” - Filnemus69% of similar organizations communicate on CSR issues
+1863 initiatives collected from 100 similar organizations
Is your score incomplete? Update your CSR information and improve your positioning.
Claim this page
Updated data
Personalized recommendations
Access complete data, competitive analyses and actionable recommendations for your clients.
Comprehensive sector benchmarks
Competitive data
Ready-to-use reports