
Healthcare network focused on rare neuromuscular diseases, providing patient care pathways, diagnostic tools, therapeutic trials, and research.
B
CSR Analysis score
The organization is among the top 20% of most committed organizations, excluding the top 5%, among comparable organizations.
+160,000
Total organizations analyzedAnalysis by axis
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Methodology: Score calculated according to 6 CSR themes (Carbon, Biodiversity, Circular Economy, Sustainable Investments, Governance, Social Impact)
Sources: Public data, CSR reports, documented initiatives, official databases
Last update: January 2026
This analysis is not yet available in English. Please see the French version.
Leading organizations
ern ithaca
B
European network focused on rare malformation syndromes, intellectual and neurodevelopmental disorders. Organizes events, webinars, and symposiums to promote research and collaboration among healthcare professionals, researchers, and patient groups.
MCGRE
A
Network of healthcare professionals, researchers, and patient associations dedicated to the care of rare blood cell and erythropoiesis disorders.
Les Biologistes Indépendants
B
Network of independent medical biology laboratories providing quality and innovative medical biology services.
Initiatives identified among leaders
Programme d’étude sur transition pédiatrique-adulte pour drépanocytose et inclusion sociale
“Ce programme vise à améliorer la transition des so...” - MCGREOffre de services de conseil et de soutien aux patients
“ern ithaca propose des services de conseil et de s...” - ern ithacaPermettre une extension de l’usage du score de risque cardiovasculaire Score 2 par une cotation et une valorisation à son juste prix
“Permettre une extension de l'usage du score de ris...” - Les Biologistes Indépendants76% of similar organizations communicate on CSR issues
+403 initiatives collected from 49 similar organizations
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