
Healthcare network focused on rare neuromuscular diseases, providing patient care pathways, diagnostic tools, therapeutic trials, and research.
B
CSR Analysis score
The organization is among the top 20% of most committed organizations, excluding the top 5%, among comparable organizations.
+160,000
Total organizations analyzedAnalysis by axis
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Methodology: Score calculated according to 6 CSR themes (Carbon, Biodiversity, Circular Economy, Sustainable Investments, Governance, Social Impact)
Sources: Public data, CSR reports, documented initiatives, official databases
Last update: December 2025
This analysis is not yet available in English. Please see the French version.
Leading organizations
ern ithaca
B
European network focused on rare malformation syndromes, intellectual and neurodevelopmental disorders. Organizes events, webinars, and symposiums to promote research and collaboration among healthcare professionals, researchers, and patient groups.
CHRU de Strasbourg - Hôpitaux Universitaires de Strasbourg
B
Providing comprehensive healthcare services including consultations, hospitalizations, emergency care, and screening programs. Focus on rare disease management, medical research, and healthcare professional training.
Fondation Maladies Rares
B
Coordination and acceleration of research on all rare diseases. Support for excellence research projects, sharing and dissemination of knowledge.
Initiatives identified among leaders
Réaliser un inventaire des bonnes pratiques en matière d'activité physique
“Réaliser un inventaire des bonnes pratiques en mat...” - CHRU de Strasbourg - Hôpitaux Universitaires de StrasbourgParticipation au projet RHU-COSY pour guérir les syndromes d'hypercroissance disharmonieuse
“La Fondation Maladies Rares participe au projet RH...” - Fondation Maladies RaresAAP conjoint de la Fondation et HPN-AM France
“La fondation lance un appel à projets conjoint ave...” - Fondation Maladies Rares70% of similar organizations communicate on CSR issues
+1667 initiatives collected from 100 similar organizations
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