Research on molecular mechanisms of rare diseases, identifying and characterizing candidate genes linked to various rare diseases, investigating mitochondrial bioenergetics and dynamics.
B
CSR Analysis score
The organization is among the top 20% of most committed organizations, excluding the top 5%, among comparable organizations.
+160,000
Total organizations analyzedAnalysis by axis
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Methodology: Score calculated according to 6 CSR themes (Carbon, Biodiversity, Circular Economy, Sustainable Investments, Governance, Social Impact)
Sources: Public data, CSR reports, documented initiatives, official databases
Last update: December 2025
This analysis is not yet available in English. Please see the French version.
Leading organizations
Genethon
B
Research and development of gene therapy medicines for the treatment of rare diseases.
Fondation Maladies Rares
B
Coordination and acceleration of research on all rare diseases. Support for excellence research projects, sharing and dissemination of knowledge.
Poxel
A
Development of innovative treatments for chronic serious diseases with metabolic pathophysiology, focusing on non-alcoholic steatohepatitis (NASH) and rare disorders.
Initiatives identified among leaders
Participation au projet RHU-COSY pour guérir les syndromes d'hypercroissance disharmonieuse
“La Fondation Maladies Rares participe au projet RH...” - Fondation Maladies RaresSensibilisation aux métiers de la recherche
“Genethon met en place l'opération « 1000 chercheur...” - GenethonAAP conjoint de la Fondation et HPN-AM France
“La fondation lance un appel à projets conjoint ave...” - Fondation Maladies Rares50% of similar organizations communicate on CSR issues
+800 initiatives collected from 100 similar organizations
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