
Coordination and acceleration of research on all rare diseases. Support for excellence research projects, sharing and dissemination of knowledge.
B
CSR Analysis score
The organization is among the top 20% of most committed organizations, excluding the top 5%, among comparable organizations.
+160,000
Total organizations analyzedAnalysis by axis
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Methodology: Score calculated according to 6 CSR themes (Carbon, Biodiversity, Circular Economy, Sustainable Investments, Governance, Social Impact)
Sources: Public data, CSR reports, documented initiatives, official databases
Last update: December 2025
This analysis is not yet available in English. Please see the French version.
Leading organizations
filière de santé mcgre (maladies rares)
A
Coordination of actors involved in rare red blood cell and erythropoiesis pathologies, improving patient care, research, training, and information dissemination.
Fondation pour la Recherche Médicale
B
Funding medical research projects in various fields such as cancer, cardiovascular diseases, infectious diseases, neurological and psychiatric diseases, and rare diseases.
ern ithaca
B
European network focused on rare malformation syndromes, intellectual and neurodevelopmental disorders. Organizes events, webinars, and symposiums to promote research and collaboration among healthcare professionals, researchers, and patient groups.
Initiatives identified among leaders
Accélérer l'innovation thérapeutique et la mise à disposition des nouvelles thérapies
“Filière de santé mcgre (maladies rares) accélère l...” - filière de santé mcgre (maladies rares)Financer des projets de recherche pour faire avancer la recherche médicale
“Fondation pour la Recherche Médicale finance des p...” - Fondation pour la Recherche MédicaleMise en place d'un processus de suivi et d'évaluation
“ERN ITHACA met en place un processus de suivi et d...” - ern ithaca62% of similar organizations communicate on CSR issues
+1435 initiatives collected from 100 similar organizations
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